Wednesday, July 20, 2011

Dum spiro, spero. While I breathe, I hope.

One year ago to this day, I had the last of two surgeries to implant a spinal cord stimulator in my lumbar spine to treat RSD/CRPS in my left leg. Less than two weeks later, I had quit my teaching position in Phoenix, Az and was moving back home to live with my parents in Forth Worth, Texas. As the one year anniversary of my surgery and move to Texas approached, it was hard to not look back over the last year without a sense of disappointment. It was with the same nostalgic feeling that people get near New Year's when they are reflecting on their accomplishments and failures in the past year, but my reflections tended towards all the days I had spent in bed because of pain. So many days wasted, so many days that blur together because there was nothing memorable about them. What proved even more difficult was remembering to keep a positive attitude in spite of everything. It's so very easy to become discouraged when life doesn't go the way you wanted or expected it would- but then I guess that's life, uh? 
I've toyed around with the idea of starting a blog several times in the past year but lacked the inspiration and concept to keep me driven -until recently. Unlike Phoenix, DFW lacks any real community for RSD/CRPS suffers and I've had real difficulty finding other chronic pain support groups as well. I frequently attended symposiums and other groups raising awareness about peripheral neuropathies after being diagnosed with RSD in Decemeber 2009 but I've had trouble finding much of anything since I moved to DFW last summer. Chronic pain is already an isolating condition with being able to meet with others who have the same condition, let alone not having any empathetic support. And so my purpose for starting this blog is two fold:
  1) to reach out to others: I want to inspire and support others while spreading information about RSD/CRPS and other neuropathies.  
  2) to learn to control the parts of my life that I have control over and to learn to let go of the parts that I have no control over: I don't want to spend another day focusing on how my life has changed for the worse and focusing on all the things I had planned that at the moment are not possible to accomplish. There is still so much I can do and I should be focusing on that fact! As long as I am alive and breathing, I should have hope!
And so starting today, for one whole year, I will post at least one thing a day- whether it be a photograph I've taken or a painting I've made, an article I found inspiring or an obstacle that needs overcoming, I will post it to this blog so that next July 20th, 2012 I will not have let another year be taken away from me. Instead I will be able to look back and point to all that I've accomplished and learned... and God willing I will inspire others in the process.

4 comments:

  1. Wow, I'm very new into this but you are inspiring. Do you have your story posted somewhere. Like I said I am only 7 weeks into RSD and I have never blogged. Ugh. I'm not even sure how to get back here.

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    1. I too was dx with RSD about 6 months ago after breaking my foot twice just by walking on it. After the casts came off, I felt I was in worse condition. Then I was dx with RSD. I am a nurse and really didnt know alot about RSD.
      I also have Multiple Sclerosis. So I sure do know the meaning of pain. We really do have to get information out about RSD. So many people have it but yet not many know about it!
      I know there is a reason for everything and I have never asked "why me?" I have always said "why not me?" I am not different than anyone else. I have had MS for 13 years. Postive thoughts and family and friends support is very important. Its hard to get up each day knowing my day is going to be filled with pain, but as long as the Good Lord lets me see the next day, well I have to make the best of a bad situation.

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  2. hi I am Leisa and I have had RSD since 1996. I was a nurse also and it is very hard to have to give up a job that you love and did for so many years. my life after 1996 has changed and was been bad and good. My ex husband left me because he said he couldnt handle it. I lost friends that said they we my friends and that they understood and would be there for me but when times got tough they left.
    my children have been the best supports emotionally that I could have. I have 2 grown sons and on daughter that is still at home. I however met the most amazing man about a year ago that has stood by me Dec 2011. I had to go back in to surg and have my SCS replaced and then fell 1 week later and tore one of the leads and broke the battery pack. so Feb 2012 I had to go back under and have the SCS replaced again. I have RSD in my right leg is were it started and now I have it all on the right side. I realize this is long and I could go on and tell you all about the past years but I will stop if you have any questions please feel free to ask.

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  3. Leisa, i have lots of questions, like is there really remission and do most people with rsd get worse in the same way? How can we talk. Teresa IL

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